Network membership 

Telethon financially supports only Genetic Biobanks belonging to the Network.
Membership is subject to yearly Telethon Biobank Committee approval. To join the Network, Applicants are requested to send a letter of interest to the Telethon Foundation Scientific Office.
After one-year pre-admission period, required for implementing the Network's procedures, newly approved Biobanks will be admitted into the Network as:

• Primary Biobank, viz. a well-established Biobank with a large collection of samples.
• Secondary Biobank, viz. a Biobank with a small collection of samples that operates inside the Network as integration of an existing Primary Biobank.

Network Organization

Network Board

• Coordinator and Biobank Director: Mirella Filocamo
• Primary Biobank Directors: Chiara Baldo, Stefano Goldwurm, Alessandra Renieri, Corrado Angelini, Maurizio Moggio, Marina Mora, Luisa Politano
• Secondary Biobank Directors: Giuseppe Merla, Barbara Garavaglia

In addition, the Network Board is supported by the Coordinator Emeritus (Franca Dagna Bricarelli, Dipartimento Ligure di Genetica - Genova, Italy)

Advisory Board

• Chairperson: Ségolène Aymé (Director of Orphanet-France - Paris, France)
• Members: Amedeo Santosuosso (President of the Interdepartmental Research Centre European Centre for Law, Science and New Technologies (ECLT), University of Pavia - Pavia, Italy), Barbara Parodi (Director of the Biological Bank and Cell Factory (BBCF), Core Facility of the Istituto Nazionale per la Ricerca sul Cancro - Genova, Italy), Renza Barbon Galluppi (President of UNIAMO Italian federation of rare diseases - Venezia, Italy), Mirella Filocamo (TNGB Coordinator)

Telethon Advisor

• Jim Vaught (Special Assistant for Biorepository Science, Division of Cancer Epidemiology and Genetics, U.S. National Cancer Institute - Maryland, USA)

Administrative activities

• Lorena Casareto

Current members

Primary biobanks

• Cell line and DNA Biobank from patients affected by Genetic Diseases
  Director: Mirella Filocamo, Istituto Giannina Gaslini - Genova
• Galliera Genetic Bank
  Director: Chiara Baldo, E.O. Ospedali Galliera - Genova
• Human genetic Bank of patients affected by Parkinson Disease and parkinsonisms
  Director: Stefano Goldwurm, Centro Parkinson, Istituti Clinici di Perfezionamento - Milano
• Cell lines and DNA bank of Rett syndrome, X-linked mental retardation and other genetic diseases
  Director: Alessandra Renieri, Policlinico Le Scotte - Siena
• Neuromuscular bank of tissues and DNA samples
  Director: Corrado Angelini, Venetian Institute of Molecular Medicine - Padova
• Bank of DNA, cell lines and nerve-muscle-cardiac tissues
  Director: Maurizio Moggio, Centro D. Ferrari, Fond. IRCCS Cà Grande Osp. Maggiore Pol. - Milano
• Cells, tissues and DNA from patients with neuromuscular diseases
  Director: Marina Mora, Istituto Neurologico Carlo Besta Fondazione IRCCS - Milano
• Naples Human Mutation Gene Biobank
  Director: Luisa Politano, Seconda Università di Napoli - Napoli

Secondary biobanks

• Genomic Disorder Biobank - Genetic Biobank from patients with Williams-Beuren syndrome and other genomic disorders
  Director: Giuseppe Merla, IRCCS Casa Sollievo della Sofferenza - San Giovanni Rotondo (FG)
• Cell Line and DNA Bank of Paediatric Movement Disorders
  Director: Barbara Garavaglia, Istituto Neurologico Carlo Besta Fondazione IRCCS - Milano